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About Duchenne Muscular Dystrophy

Duchenne’s muscular dystrophy (DMD) is an inherited muscle wasting disease characterized by progressive muscle weakness.Duchenne’s muscular dystrophy (DMD) is an inherited muscle wasting disease characterized by progressive muscle weakness. This muscle weakness occurs when an affected child’s muscle tissue is unable to produce a structural protein called dystrophin. Without this vital protein, muscles suffer significant damage and eventually die.

The progression of DMD causes orthopedic complications, respiratory failure, and heart failure. Boys with DMD are diagnosed in early childhood and are confined to a wheelchair by early adolescence. Because there is no cure for DMD, the life expectancy for a diagnosed child is the late twenties.

Read more …About Duchenne Muscular Dystrophy

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Why 3 Brothers Against Duchenne?

romito bro knotThe logo started with the Brotherhood Knot. 

  • For Duchenne families, they are part of a brotherhood, hoping for a cure, connected by the disease.  
  • For Duchenne patients, they are young men and boys, a brotherhood, fighting. 
  • For everyone, connected by a cause, to find a cure, to improve the lives of those living with the disease.

    All connected, all united, brothers in arms, a brotherhood united, a knot holding them together.  

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The Romito Foundation's History

dominick kaleb collinIn 2007 the Romito family was hit with devastating news, Dominic was diagnosed with Duchenne Muscular Dystrophy (DMD). The neurologist explained to them that Dominic’s muscles would rapidly deteriorate, he would lose the ability to walk, to use his arms, the ability to take care of himself. Eventually Duchenne would attack his heart and lungs and the disease would take his life.

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The Romito Foundation Objectives:

Striving to improve the quality of life of those living with Duchenne Muscular Dystrophy

1. Directly provide funding to research for developing treatment and cures for DMD.

2. Conducting charitable events to raise public awareness as well as raising funds for our goals.

3. To partner with other organizations pursuing like goals.

4. To identify the best possible avenues to improve quality of life for people with DMD and augment funding in those areas.

The Romito Foundation Mission:

To improve the treatment and quality of life for all persons living with Duchenne Muscular Dystrophy (DMD)

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